About The Disease

Endometriosis is an underreported medical condition in which tissue similar to the lining inside the uterus (endometrium) is found outside the uterus, where it induces a chronic inflammatory reaction.
 It has no known cause or cure and patients often suffer from social stigmas.
Patients often suffer from years of intense (sometimes unbearable) pain before getting a correct diagnosis and often have infertility problems. ‘MyEndo’ is just one couple’s story about their search for answers and pain relief, but stories can been found all around you.
Every case is different, as the disease comes in many variations and constantly changes, therefore a good follow-up is necessary.

“Every woman feels her periods pass, but you are not supposed to be stuck in bed for three days.”
Prof. Dr. Christel Meuleman

The beginning – Symptoms

The most common symptoms to look out for are;
– heavy and painful menstruation that worsen over time
– chronic pain in the abdomen
– pain when urinating and/or in the bowel movements
– blood loss and/or pain during sexual activities
– fatigue

What to do?

When you think you have Endometriosis, it is advised to look for a specialist. Talk with your gynaecologist and ask him/her for a referral.

I have Endo.

When your specialist suspects/knows you have Endometriosis, they will likely perform the following procedures;
– Gynaecological ultrasound
– MRI-scan
– RX
The only definitive way to diagnose endometriosis is by a laparoscopy, a low-risk, and minimally invasive procedure.

Treatment

Your specialist will look for the best solution to tackle your Endometriosis.
Common treatments are:

– Hormonal treatment: the intake of hormonal medication will force the ovaries to stop working. This will prevent the Endometriosis from increasing, but it will not disappear.

– Laparoscopy: your specialist will remove the affected tissue via keyhole-surgery.

Living with Endo

Living with Endo can be complex and can have a huge impact on your life. That’s why it is important to get a regular follow up by an Endometriosis specialist and live a healthy lifestyle.

Talk with an Endo sister?

Do you feel the need to talk to somebody who feels your pain? Click on the links below and find your local Endo community!

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